Hey, guys! Sophie Kate had her CT scan and urology appointment on Tues. (July 29). We found out that Sophie does have one kidney stone in her left kidney. It is very small, like the first one she had. At this point we are going to watch it and see if she can pass it on her own like she did with the first one. We will go back for an ultrasound and a visit with her urologist in 2 months and we will probably do that until the stone has passed. They want to make sure that it doesn’t get too much bigger and that it is not blocking anything or doing any damage to the kidney. There is talk about running some tests once this stone has passed to see what has caused this second stone, but the doctor told us that nothing can be done until she is completely kidney stone free. So please pray that Sophie Kate can pass this stone without incident, b/c as you all know she doesn’t really do “without incident” very well. Then we can get started on seeing why this keeps happening to her and maybe be able to do something about it.
I wanted to take some time to share with all of you something that has been on my heart lately. I am in a group online that is made up of parents with a child with the exact same diagnosis as Sophie Kate. I have told ya’ll in the past that there is not a lot of info out there on HIE for parents it all mostly consists of medical journals and articles. I don’t really know how to not make this long and drawn out, so forgive me. There are lots of great people in the group with good advice and good ideas and I am so glad that I found them. A lot of them also have a family blog of some sort like we do and I read them from time to time just to keep updated with everyone. The parents have shared on their blogs occasionally about how they will encounter different people who react to their child in a negative way or say something thoughtless or hurtful and these parents have always respond to these people with such grace and courage even though they have been really hurt on the inside. Well, I have been thinking about this lately, I don’t know why, but I say all that to say this…We have been surrounded by such a great community of family and friends. Everyone is so supportive, kind and caring toward us. You are all so concerned about how Sophie Kate is doing and how we’re doing and we are so appreciative of that. I know that SK is still very little and many people may notice anything at this point. I also know that my day may be coming at some point in the future and I certainly do not look forward to that day. As of now though, we have surrounded ourselves with some great people. We go out a good bit with SK and see people we know and ya’ll are all so kind to us. It is scary to venture out into the unknown, we have been doing that for 8 months now against our own wills I might add. For now I am happy to be in my little cocoon here in Trussville. We feel so supported and so loved by all of you and that is such a blessing to us.
These pictures were taken by my friend Abby, thanks so much, I just love them!
more pictures have been posted in the photoalbum
Hope everyone has a good weekend!